Salix Pharmaceuticals provided me with a stipend and paid for my travel and accommodations related to the event. However, all opinions are my own. Most people I meet hate talking about poop, but I don’t mind. Poop is one aspect of life we all have to deal with, and I’ve recently learned it is an important topic for those of us with chronic pain. So, I’ve never shied away from talking about it or any of the other “icky” topics. When Salix Pharmaceuticals asked me to participate in a blogger event, I was wary at first—I so rarely do projects with pharma—but when they explained that it was a unique art event designed around learning about “Painstipation” (the constipation caused by opioid pain medication in chronic pain patients), and that they were presenting findings from a survey on opioid induced constipation (OIC) sponsored by Salix in partnership with U.S. Pain Foundation, I just had to say yes. I mean, art and poop talk – this was going to be interesting. I knew a good bit about OIC before the event, because I have chronic pain and have taken opioids in the past—and because I’ve heard about OIC as a volunteer and creative partner with U.S. Pain Foundation since 2010. So many people in the chronic pain community rely on opioids to help manage their pain. This means many of them also have to deal with OIC. A bunch of feisty bloggers Salix invited me and three other bloggers out to California to attend an educational, creative event about “Painstipation.” Leslie Vandever is a blogger I’ve known for ages; she has rheumatoid arthritis, and she writes at Rheumablog, among other venues. She has openly shared that she relies on opioids to manage her chronic pain so she can continue to work and advocate for the chronic pain community. Brittney Wilson, BSN, RN, also joined us; she’s been blogging for years as The Nerdy Nurse, and has a reputation as a popular health care blogger. Charis Hill was the other blogger with us, and although I had not seen her blog at Being Charis, we clicked right away—she’s a firecracker. (In her blog, you’ll learn that she lives with ankylosing spondylitis.) For a moment, I wondered if Salix understood that they had a room full of feisty advocates on their hands? None of us are quiet bloggers—we’re all fighting the good fight for better health care for all. Once I recognized the potential for all of us to get creative together using art, I really appreciated the thought that had gone into the event. The research: opioid-induced constipation and chronic pain Before we made art, we talked about the survey. Salix, in...
Who loves ChronicBabe?
"ChronicBabe has been a port in the storm for me ever since I became chronically ill. It opens a whole new world to those of us who suffer every day from chronic pain and illness."
– Toni Bernhard, author of "How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers" and the NEW "How to Wake Up: A Buddhist-Inspired Guide to Navigating Joy and Sorrow"
"Many physicians don't know what it's like to experience the diseases that they treat in the exam room. It's tremendously instructive reading from the perspective of a patient, and sites like ChronicBabe.com provide an important window for providers to appreciate the journey patients take in our health system." – Kevin Pho, MD
"I never expected to become chronically ill in my mid-twenties, but thanks to the ChronicBabe web site and forums I discovered I wasn't the only woman battling my own body at such a relatively young age. Chronic pain can be isolating, but thanks to ChronicBabe I know I'm never truly alone." – Jennette Fulda, author of "Chocolate & Vicodin: My Quest for Relief from the Headache that Wouldn't Go Away"
"Many physicians don't know what it's like to experience the diseases that they treat in the exam room. It's tremendously instructive reading from the perspective of a patient, and sites like ChronicBabe.com provide an important window for providers to appreciate the journey patients take in our health system." – Kevin Pho, MD
"I never expected to become chronically ill in my mid-twenties, but thanks to the ChronicBabe web site and forums I discovered I wasn't the only woman battling my own body at such a relatively young age. Chronic pain can be isolating, but thanks to ChronicBabe I know I'm never truly alone." – Jennette Fulda, author of "Chocolate & Vicodin: My Quest for Relief from the Headache that Wouldn't Go Away"
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